Having some fun at Oasis.

Olivia's Montessori school had a family fun night at Oasis. Ever been? It's a blast! I was all sweaty and red in the face. Olivia and I had the best time playing on the climbing area. She hung out and followed me around making sure I was safe. We're pretty much best buddies at this point. She went off with one of her friends for a few minutes so my dad went through with me. He isn't anywhere near as nimble as she is. I had to stop and wait for him to squirm though a few times...

Matthew built a block fort. He and my dad were throwing those foam blocks at each other.

This is me and my big bro Matthew a few months ago. I'm looking straight gangsta aren't I. That chain is solid gold.

I used to make this funny face when I was little.

This is the TV I broke. The graphics look so real these days. How was I supposed to know that I couldn't throw something at it?

My new bed!

Each night after my mom and dad tuck me in my dad sings me a song, usually 'Teach Me' because that's the easiest thing for me to say. Then we blow kisses and I fall asleep. There are two things I have to go to bed with- my two piddows (pillows) and my woof. Well, I've been perfectly happy with this routine but you know what they say 'change is the only constant in life'. So now that I'm three my mom thought it was time for me to have my own big boy bed. She bought me a new mattress and put it on the bottom of Olivia's bunk. (Olivia and I share a room by the way because she loves me that much.) As you can tell I fell right asleep on my first night in my new bed. I didn't get up or anything. I can't believe that my dad snuck in and took a picture of me. Good thing I didn't have my mouth wide open!

This is me blowing kisses to you! 

Guys?

Hi guys! I haven't posted in a LOOOOONG time. I'm going to get back into it for several reasons. Look forward to lots of catch-up. I promise I will start posting how my family and I are doing. Talk to you soon! 

- Johnny

I turned two months old on Saturday. That means I've been home almost as long as I was in the hospital. Crazy isn't it?! I feel and act like a normal baby. You would never know all that I went through if you had just met me today. Everything in my life is as normal as possible which is why I don't have anything exciting to report. No news is good news.

I've been to church, I've been to the store, I've been out to lunch. My mom usually tries to take me places only when I'm sleeping. When I wake up in public and start to cry I'm hard to get under control. It's just my way of saying 'put me back to bed' or 'hold me' or 'feed me' or 'change me'. Because lets face it, that's all I really care about right now. I love being held by my family and they love to hold me. We're a match made in Heaven!

See you later and thanks for checking up on me!

<3 <3 <3 Johnny

This marvelous little device is called the Baby Brezza. It's like a Kuerig for baby formula! We just push the button with how many ounces we want and it goes right into my bottle. Perfectly mixed at the right temperature. A bottle takes about 10 seconds to make!

My dad carries me around the house in this little sling. I love being held close. We were rocking out to Keith Urban at the time of this picture. ;-)

TUMMY TIME ! ! ! !

My big brother Matthew and I. Yes, I do get nervous when he holds me. But I know he loves me because he tells me. "I wuv you baby Johnny"

I'm doing well thank you for asking.

I'm doing well thank you for asking. After I pulled out my feeding tube my parents decided to try feeding me exclusively with the bottle. I have been doing a good job with it, I'm so proud of me. I wake up twice a night to eat and I go back to sleep usually. I've have tummy time twice a day and I love it. I lay there all perked up like a puppy. I also went to Chucky Cheese's today. It wasn't really my gig. I slept the whole time but Matthew told me he had fun. I'm like a little baby just like I'm supposed to be. If you didn't know any better you would have no idea what I went through. I am thankful that life seems to be normal.

What is a post without pictures?

<3 <3 <3 Johnny

This is my place of comfort. I hang out in this little shin dig a lot.

This is our cat Regina. She has taken it upon herself to be my guardian. I'm pretty sure I can handle this on my own but I appreciate her effort to keep me safe.

I was happy right until the camera came out.

Olivia hearts me... and I heart her

Yesterday was one whole week since I've been home. I'm adjusting well I suppose. I don't really have anything too exciting to report. I get up twice a night to eat and I usually fall back asleep though I have stayed up for a few hours just to throw my mom a curve ball, I can't make it easy. I've been to two different doctors to be checked out. They have found everything to be normal with me. That's a relief because I like being home. No need to go back to a hospital.

I just pulled my feeding tube out an hour ago which is why I'm up blogging right now. I'll try to take all of my bottle and then moms and pops will put it back in the morning. I'll be sure to make it difficult for them. I squeak when I breath still. That is supposed to go away as my lungs and throat heal from the breathing tube. I have the cutest little snore when I'm sleeping too. And on another note yesterday was my momma's birthday. Happy birthday mom!

See you later! <3 <3 <3 Johnny

That's me without my tube. I want that thing out permanently!

My mom and her birthday cake. My dad made it (bought it) all by himself!

My mom being silly. She didn't think I'd post this one.

This is my sad face on the way to the doctor.

Life at Home

I've settled in pretty good here at the ranch. I've been awake each night for about three hours at 3:00am. My mom watches movies with me on her Kindle. She's getting all caught up on her shows. I'm getting used to the racket that the others make when their home. My mom has to take me into her bedroom to feed me so I can concentrate and focus on eating. It seems to help because I was struggling to eat for a little while. She has to hold me just right and give some chin support for me to take my bottle. I still use my tube for about half of my feeding. My cry is getting louder which is good news because I plan to have a career as a singer.

There are plenty of siblings to hold me and feed me. They argue over who gets to hold me next and who held me last. I usually fall asleep in someone's arms. And someone usually gets sent to their room for getting impatient and too loud.

My home nurse will come tomorrow and check on me. She'll make sure my parents have me under control and that they're taking care of properly. They have a few questions lined up for her.

Thanks for checking in on me. TTYL <3 Johnny

Can I get cuter? Don't think so!

Sleeping with my momma. That's my phone in the background. The other kids think I got one too early, they're jealous.

The feeding tube is convenient because anyone can feed me.

My dad and I. AND my big bro photo bombing my dad with a kiss. He's adorable too.





Olivia will hold me for hours at a time.

This cat must not know what curiosity will do to her.